Chiari . . . I didn't know what it was either
I few months ago, I didn’t know Chiari Malformation existed and then I came across the topic while doing some research on CarePages. Frankly, I feel lucky that I don’t have it and I feel really bad for the people who do. It is a bottom-of-the-skull thing; it is a PAIN thing. As I understand it, you are born with it and it may lie dormant for a long time; then again, it can assert itself in childhood. It’s trademark is PAIN. A lot of it.
Obviously, I do not understand it very well, but I understand these CarePages I have been reading. One of the people who have it was featured on the CarePage homepage, along with an invite to read Gabe's Story. Reading it may be difficult, but, hey, living it it . . . Well, that is the stuff of nightmares.
posted by Jody @ 7:07 AM
2 Comments:
WHO IS THIS ? Do you have chiari and SM . are you the one that had surgery in MARYLAND
I'm just a lady in Indiana who became familiar with CarePages when Myles Levin was on Anderson Cooper. I researched them and wrote a short article for a small local newspaper. While doing that, I saw Gabe's story - FAILURE IS NOT AN OPTION - and started following it. I was amazed at how devastating this disease - of which I had never heard - could be.
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